Apraxia Defined
"Apraxia was a new word to me but it explained exactly what was happening to me. I could think perfectly but the message would not follow the nerves to my body to make it do what I wanted it to."
Gregory C. Tino in The Autistic Mind Finally Speaks: Letterboard Thoughts
Nicolas Segrera
"It's hell many times, you want to do a lot but your body doesn't let you."
Lucy Cohen
"My mind talks to my body but the communication is interrupted. So I can’t always make my body do what I want. It’s like trying to get directions to a friends house and the phone line is full of static. She’s telling me where to go but I’m only catching a word here or there. So I end up lost."
Kari
"Brain knows what it wants body to do body can not execute brain's commands"
What Is Apraxia?
In Communication for Education, apraxia is defined as “a motor (meaning movement) disorder” or a "brain-body disconnect" (2024, p. 2). This means that messages from the brain do not always make it to the body, which results in the body acting without the brain’s direction or intention. Individuals with apraxia understand the world around them, but they are unable to fully control their bodily movements, and some use Augmentative and Alternative Communication, or AAC, to communicate. When interviewing parents Autumn and Kevin, Autumn said apraxia is an “output issue, not an input issue” and a "speech disability or difference and a communication difference." In summary, Kevin shared that “A person with apraxia has a capable mind but an uncooperative body."
Though apraxia may not always be connected to an autism diagnosis, about 60% of people with autism have apraxia, according to Jeong and Darroch in their 2021 article. To give some perspective on prevalence, this means that difficulties with purposeful motor tasks are prevalent in over half of children with autism and also affect other individuals outside of this population. Though music therapy has been studied extensively with autistic individuals, little research speaks to music therapy and apraxia or motor differences, and most speaks to social and emotional goals. Autumn notes that this is perhaps due to the sensory, motor, and communication differences that naturally have an effect on one's ability to express emotions and socialize with others. This means that social and emotional goal areas may be addressing an outcome, rather than the root of the inaccessiblity of social and emotional environments for individuals with autism or apraxia.
As a disclaimer, Autumn shared that it took a long time to obtain an apraxia diagnosis for her child, and she recognizes their privilege to even receive a diagnosis when so many people continue on without a diagnosis. Keep in mind that as apraxia may be underdiagnosed, it may affect more clients than are able to be diagnosed.
Four Types of Apraxia
(as described in Communication for Education)
Augmentative and Alternative Communication
Many clients with apraxia or difficulties with purposeful motor skills utilize Alternative and Augmentative Communication (AAC) to communicate. AAC includes any method of communicating or expressing ideas utilizing tools outside of or in addition to speech. Several examples of AAC are outlined below.
In this video, Devon showcases how she uses AAC to communicate using the Chatterboards app by selecting ukulele from a list of instrument choices and musical activities.
There are many methods of AAC, and various examples are classified into categories below, informed by lectures from Crystal King, MSEd, MT-BC, who specializes in AAC and teaches on this topic at Florida Gulf Coast University. Low tech AAC involves no batteries or voice output, mid tech AAC uses batteries but may have programming limitations, and high tech AAC uses batteries and has wider programming capabilities.
Another way to categorize some AAC methods is identifying text-based communication and non text-based communication methods. Text-based communication uses purely words, while other types of AAC may use pictures along with words. One consideration is that some individuals who were interviewed for this project expressed preference for text-based communication, as it recognizes that the individuals communicating are capable of reading and literacy, in contrast to picture-based AAC, which may imply the individual is unable to read the words presented.
Examples listed below include AAC methods used by clients at Music Therapy St. Pete as well as examples mentioned by Crystal King and encompass only a small sample of AAC options available.
Low Tech:
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Gestures
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Sign Language
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Writing or drawing
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Pointing to parts of the arm or hands
To present a couple of options, assign each option or potential answer to either an area of the forearm or each hand. For example, assign one answer to the wrist and one to the inner elbow area or assign one answer to the left fist and one to the right fist and ask the individual to point to the option they prefer.
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Quadboards
To create a quadboard, use a dry-erase marker to section off four quadrants on a small markerboard by making a cross in the center of the board. Ask a question with four options and write one possible answer in each quadrant. When presenting the board, hold it in front of the individual on their dominant side. Remove it from their field of view by lifting up the board at a right angle, then hold it directly in front of their dominant hand for the individual to point to the desired option. Providing an option of "something else" may be an effective way to ensure the individual does not feel like they have to agree to an option they do not truly prefer just because that is what is offered.
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Letterboards
Letterboards are AAC tools that display the alphabet, enabling individuals to point or tap the letters of words they wish to spell, providing room for a large vocabulary of words. Spelling to Communicate (S2C) is a text-based communication method using letterboards that several of the clients with apraxia at Music Therapy St. Pete use to communicate. Individuals who use this method may choose to identify as spellers, as they spell to communicate. S2C teaches clients the purposeful motor skills to spell words to a communication partner using a letter board. Communication partners hold the letterboard near the dominant hand of the individual while they are seated and provide appropriate prompting while the nonspeaking individual points to each letter in the words and sentences they wish to spell.
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Picture words or boards
Mid Tech:
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Step by Step Switches
These are colored buttons that may be programmed to play certain words or phrases by recording said words or phrases onto the switch beforehand. When the switch is pressed each time, it plays the recorded words or phrases one at a time.
High Tech:
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Text-based communication apps on an iPad
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Proloquo4Text: This text-to-speech app shares a keyboard on the screen equipped with word and sentence prediction capabilities and a single screen layout, providing opportunities to program in commonly used phrases and a voice output option and available at the price of $119.99.
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iMean: An app available for iPad and iPhone that provides a digital letterboard with three word prediction options as well as yes or no buttons, at the price of $4.99.
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Apple's Live Speech
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Chatterboards: A free app that allows a person to create personalized vocabulary boards with customizable buttons with editable text, colors, images, and audio playback features.
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Additional Resources:
The Meraki Collective provides services to nonspeaking individuals learning to communicate using this type of AAC and provides opportunities for spellers looking to find community with others.
Communication 4 All is an online resource providing additional information about typing to communicate. Elizabeth Bonker, a poet, lyricist, and co-author who is affected by autism and types to communicate, provides free resources to those learning to spell and advocates for nonspeakers.
Communication for Education is a webpage with valuable trainings geared toward educators and anyone else working to support spellers. Their trainings provide clear definitions and useful strategies, and they share feedback and thoughts from spellers as well.
Watch this recent CBS interview below with advocate Jordyn Zimmerman to hear her perspective on AAC:
References
Jeong, A.A.Y., & Darroch, B. (2021). Using letter boards in client-centred music therapy: "Autistics can teach if some are ready to
listen." The New Zealand Journal of Music Therapy, 19, 34-53. https://www.musictherapy.org.nz/2021-2
Peña, E., Quinn, L. M., & Sando, J. (2024). Module 4: Apraxia. Communication for education (pp. 1-8). Communication for Education.
Tino, G. C. (2020). The autistic mind finally speaks: Letterboard thoughts.